Kawasaki Disease Awareness poster in Chinese (simplified)

16/04/2019

Our awareness posters is now available in Chinese (simplified). The poster is available in two sizes that can be downloaded and printed either at home or at your local print shop.

The posters can be downloaded here:

Chinese (simplified) 12 x 18 poster – can be printed at a print shop

Chinese (simplified) 8.5 x 11 (letter-sized) poster – can be printed at home

Many thanks to one of our volunteers for translating the poster and Katherine Lalonde, of KL Design, for doing the design work to convert the posters to Chinese.

Thanks also to our friends at the Kawasaki Disease Foundation of the United States for allowing us continued use of their poster and awareness images.

Aayan’s Story

This is Kawasaki disease in Canada.

22/02/2019

This is Aayan’s story, as told by his mother, Antara.

When my son’s fever persisted beyond 48 hours and his neck was stiff with swollen lymph nodes (and he did not respond with Tylenol/Advil), we took him to his family doctor. His doctor gave him antibiotics to treat what ‘appeared to be a really bad case of strep’. When a rash broke out, and the palms of his hands and soles of his feet seemed red and swollen, after 12 hours of administering the antibiotic, we became very concerned that this might be an allergic reaction to the antibiotic. We quickly rushed back to his doctor, since he had also stopped eating and drinking at this point complaining of a raw tongue. The family doctor then referred us to the ER.

After spending the night in the ER, the ER doctor simply administered Benadryl and asked us to go back home and try an oatmeal bath to clear up the rash and to continue giving him liquids with now a new prescription for an antibiotic. Late afternoon on day 4, his fevers remained very high, and he was extremely lethargic when we tried to give him a bath at home to bring down his temperatures. Right then, his nose started gushing blood (which my son has never had before) and at this point was not walking. We called the ambulance, and went back to ER.

After running several tests, and with my son’s health deteriorating quickly, his blood showed high levels of inflammation, but no signs of a bacteria or anything viral. This time, we were blessed to have a different ER doctor, along with an ER pediatrician (now on Day 5).

They identified high fever for 5 days, plus swollen lymph nodes, red bloodshot eyes, cracked lips with strawberry tongue, mysterious rash with swollen hands and feet (which was now starting to fade) and officially diagnosed him with Kawasaki disease. With text book/classic symptoms of the disease, they rushed him to do an echocardiogram of his heart and to take a look at his coronary arteries. In the meantime, we were asked to sign the paperwork to start his Intravenous Immunoglobulin (IVIG) treatment.

They began treatment within 2 hours, and by day 6 he received the required dose of IVIG. By days 7 & 8, temperatures were down and back to normal, and they confirmed the treatment was successful. We began Aspirin and Prevacid at the hospital and continued at home for 8 weeks. My son’s cardiologist continues to perform follow up echocardiograms and EKGs with results showing normal.

We are extremely blessed that the KD diagnosis was finally made and that the treatment was administered within the required 10 day window of opportunity. We are also grateful to his cardiologist and pediatrician that continue to follow up.

Sandra’s Story

This is Kawasaki disease in Canada.

09/02/2019

This is Sandra’s story, as told by her mother, Pam.

It was February 2003, yet it seems like yesterday. Sandra was only 5 months old when it started. Fever, not nursing, pale and fussy. I took her to the emergergency room and  they thought chest infection. Day 2 she woke with a rash and still a fever. Back again to the hospital and she was admitted that night for 2 days. Still no answers. Only Tylenol and Benadryl would help. One doctor thought maybe KD. No one would listen. No one believed it could be, they thought impossible. Back and forth to the hospital, until day 16 — I went back to emerge again. Sandra was not well, not active, not happy. The doctor on call wanted to admit her again but no beds were available. At this time we didn’t know, but SARS was hitting our hospitals. I went home and Sandra was finally going to sleep. The doctor called me at 10pm that night. He made a call to a doctor on call at another hospital willing to see Sandra. It was out of town but we could go. I was tired, Sandra finally sleeping, no one to watch my son, I asked, “Can I wait till tomorrow?” He highly suggested not to. We went. Thank God we went. Sandra almost had a heart attack. Her blood was was so gelled they couldn’t get any blood from her. They did an echo and found four large aneurysms in her coronary arteries and a blood clot in one artery. We were then rushed to Toronto SickKids where she had a blood transfusion done. Then an IVIG transfusion. I was told they didn’t think she would make it. We were in SickKids for 7 days. When I was released I had to go home and have nurses come to show me how to take care of Sandra. She had two injections a day of blood thinners. I never thought I could do this. Her nursery became her hospital room. Seventeen days, seventeen long days of this disease building in her because the doctors said it was impossible for her to have Kawasaki disease. Nothing is impossible. Like the fact that Sandra is now 16 years old and thrives on life. We still deal with some issues. She is still on blood thinners, yearly check ups and has an aneurysm in her coronary artery.