Isabella’s Story

This is Kawasaki disease in Canada.

15/01/2019

This is Isabella’s story, as told by her mother, Anissa.

Isabella started getting a fever and stomach pains, so we took her to a walk in clinic and they said she had a virus and to give her Tylenol. Two days go by and she begins to get a rash and her fever was reaching 104.7F, so we took her to the hospital where they diagnosed her with hand, foot and mouth disease and told us to keep giving her Tylenol. Her fever kept persisting. She couldn’t walk because she was in pain and complained that her neck and back were hurting, so we took her to SickKids hospital two days later and they said she was dehydrated but that she had hand, foot and mouth and it will go away soon (that was 3 doctors who misdiagnosed her at this point). Three more days go by, she still has a fever, can’t walk and now her lips are bleeding, chapped and the skin around her eyes are red. So we took her to a different walk in clinic and thank goodness for this doctor who looked at her and said,“You need to go straight to the hospital. I think she has Kawasaki disease.” She wrote it on a piece of paper for me to take to the hospital and when I took her they finally admitted her in the hospital. She was treated with IVIG on day 8. Her fevers still persisted after the transfusion for about two days and they gave her Prednisone and Aspirin to take and thankfully the fevers came down although her rash did continue for another two weeks after the transfusion. This happened at the end of November 2018.  We go for her echocardiogram at the end of January and praying she is clear.

Isabella is a very athletic 7–year-old who has tons of energy, but since she was diagnosed with Kawasaki disease she does not have the same energy as she once used to have. She gets tired easily now. When she is really tired her eyes turn red. Her skin is peeling on her hands and feet. Slowly she is getting back to herself but it is a long process. We hope this story can help other parents become educated on Kawasaki disease and to advocate for your child if you feel like something is wrong. No matter how many times the doctors told me she had hand, foot and mouth disease I knew something was off. You know your child best.

 

**Opinions expressed are those of the parent who submitted this story.