Looking for online research study participants

The research study aims to to explore the needs of families whose children have coronary artery involvement and require long-term management.

January 31, 2018

 

Kawasaki Disease Canada is pleased to announce that we are supporting researchers, Dr. Brian McCrindle and Dr. Nita Chahal, of the Hospital for Sick Children, with their latest research study by connecting them with KD families.

The research study aims to to explore the needs of families whose children have coronary artery involvement and require long-term management.

We would like to invite you and your child (10-18) to join an approved research study to explore education/learning needs, feeling and social experiences of living with the long-term effects of Kawasaki disease. The study will be conducted through an online questionnaire.

Previous research at The Hospital for Sick Children showed that there was a need for educational and psychosocial support for both parents and children. This study aims to expand on required educational and psychosocial support.

For this study, researchers would like to learn your and your child’s learning and social needs. The study will ask questions about you and what you know about KD, and about activities, learning preferences, social experiences and KD history.

The information from this project will guide the planning of the best care that addresses the learning and psychosocial needs of children and families who are living with the diagnosis of complex KD (ie. coronary artery involvement that requires ongoing follow-up).

We are looking for parents and their children who meet the following criteria:
-Currently 10 to 18 years old with coronary artery involvement (dilatation and/or aneurysms) as a result of KD
-On anticoagulation (blood thinners) and/or antiplatelet therapy
-At least six months post KD diagnosis

If you are interested in participating and meet the above criteria, please email Carin at carin@kdcanada.org for more information.

(NOTE: The questionnaire is only available in English. The ability to read/write in English will be required to complete the study questions.)