Looking for online research study participants

The research study aims to to explore the needs of families whose children have coronary artery involvement and require long-term management.

January 31, 2018

 

Kawasaki Disease Canada is pleased to announce that we are supporting researchers, Dr. Brian McCrindle and Dr. Nita Chahal, of the Hospital for Sick Children, with their latest research study by connecting them with KD families.

The research study aims to to explore the needs of families whose children have coronary artery involvement and require long-term management.

We would like to invite you and your child (10-18) to join an approved research study to explore education/learning needs, feeling and social experiences of living with the long-term effects of Kawasaki disease. The study will be conducted through an online questionnaire.

Previous research at The Hospital for Sick Children showed that there was a need for educational and psychosocial support for both parents and children. This study aims to expand on required educational and psychosocial support.

For this study, researchers would like to learn your and your child’s learning and social needs. The study will ask questions about you and what you know about KD, and about activities, learning preferences, social experiences and KD history.

The information from this project will guide the planning of the best care that addresses the learning and psychosocial needs of children and families who are living with the diagnosis of complex KD (ie. coronary artery involvement that requires ongoing follow-up).

We are looking for parents and their children who meet the following criteria:
-Currently 10 to 18 years old with coronary artery involvement (dilatation and/or aneurysms) as a result of KD
-On anticoagulation (blood thinners) and/or antiplatelet therapy
-At least six months post KD diagnosis

If you are interested in participating and meet the above criteria, please email Carin at carin@kdcanada.org for more information.

(NOTE: The questionnaire is only available in English. The ability to read/write in English will be required to complete the study questions.)

Student Research Update

Ongoing research to examine the ability of galactosugars to reduce disease severity

January 8, 2018

 

In April 2017, we awarded Alicia Fisch with the Kawasaki Disease Canada Student Research Award. Alicia’s research is supervised by Dr. Rae Yeung, Professor of Paediatrics, Immunology and Medical Science at the University of Toronto and the Senior Scientist in Cell Biology Research at The Hospital For Sick Children.

The research Alicia is conducting may help to establish a novel predictor of Kawasaki disease development, aiding in diagnosis, as well as provide an alternative treatment approach. Alicia’s research objective is to examine the role of elastin-derived peptides (EDPs) in the development of Kawasaki disease and whether it can be inhibited by galactosugars (such as lactose). Alicia’s newest finding is that galactosugars can be used to alter heart disease in mice developing KD. Diseased mice fed galactosugar-supplemented water developed less severe disease compared to those fed non-galactosugar-supplemented water. Research is ongoing to examine the ability of galactosugars to reduce disease severity. This could be the start of a new approach to treating patients with Kawasaki disease!

You can read the detailed update of Alicia’s research here.

Help us continue supporting research that could lead to improvements in the diagnosis and treatment of children with Kawasaki disease by donating.

William’s Story

Undiagosed Kawasaki Disease

January 6, 2018

This is little William. William tragically passed away shortly after his first birthday as a result of undiagnosed Kawasaki disease. Over a span of three weeks, William was diagnosed with an ear infection, influenza and pneumonia by various doctors. It was not until he passed away due to a heart attack, 27 days after his initial fever, that it was discovered that he had developed multiple aneurysms as a result of Kawasaki disease.

In remembrance of William, please help us raise awareness of Kawasaki disease, so that we can try to prevent another precious child from being taken away too soon.

To learn the symptoms, please visit our home page.

(Thank you to William’s mother, Jasmine, for having the bravery to share her story with us.)